Convulsion / seizures|
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Convulsion / seizures
By Ava on Thursday, June 23, 2005 - 10:08 pm:
my son had 3x convulsion already and everytime he will have fever of 38.5 c i have to bring him as fast as i can to the hospital here in my country. i am wondering if there is any competent or knowledgeable doctor in japan who knows how how to deal with convulsions. i am not really sure if there are any cases such as this in japan. i will be returning back there with my son and i am wondering if some doctors can prescribe me medicine such as anti convulsion drugs whenever he will have fever there just in case. it's going to be very difficult on my part especially if my son will have fever there since i cant drive and i'm not that fluent in japanese. pls help.. thanks
By Scott Hancock on Thursday, June 23, 2005 - 10:22 pm:
I've also sent mail to your registered email address, but in case you're only monitoring here- the best place to go is:
National Center for Child Health and Development
2-10-1 Okura, Setagaya-ku, Tokyo 157-8535 (opened March 2002) http://www.ncchd.go.jp/English/English.htm
The name of this hospital in Japanese is: "Kokoritsu Seiiku Iryou Center"
Please see my email if I can help you on the phone.
You need to get your son to a hospital immediately.
By Bethan Hutton on Thursday, June 23, 2005 - 11:16 pm:
I think plenty of children in Japan also have febrile convulsions - I have been asked several times at baby/child health check-ups whether either of my children have ever had them. They haven't, but presumably the fact that the question is asked means that it is not an unusual problem here. From what I've read, children do usually grow out of this.
By the way, the Japanese word for febrile convulsion is "nessei keiren".
If you haven't already got a copy, I would recommend buying "Japan Health Handbook", an English guide to healthcare in Japan which has useful lists of doctors, hospitals and medical vocabulary.
By Anne Bergasse on Thursday, June 23, 2005 - 11:27 pm:
Ava, just last week, our two-year-old son
had a convulsion due to high fever. It was
his first and our first experience with it.
His fever was nearly 40 and it had shot up
pretty fast. He actually stopped breathing,
eyes rolled back in his head and his skin
went very dark. It lasted less than a minute
but it was scary as hell.
The clinic we took him too handled it very
well. They examined him, told us that it
might be likely he would have another one
and gave him diazapam - inserted into his
rectum. They also prescribed Alpiny which
is the same as tylenol to help bring the
Since the visit was all in Japanese, I asked
for the English spelling of all the drugs
and went home and researched it all and
found out that the convulsions are called
Febrile convulsions. Apparently, they are
quite common in children under 3 - are
brought on by high fever - and do not
result in permanent brain damage, death
or epilepsy. I was much relieved to read
this since one of my children is prone to
The trick is to keep the fever down. The
diazapam, also called Rectal Valium is
also given commonly for this to prevent
Our little baby's fever went down and he
never had another convulsion again, thank
The care we received was excellent and we
live in the countryside. I'm sure that you
will find proper treatment in Japan.
Hope this helps.
By Kathleen Benton on Friday, June 24, 2005 - 1:14 pm:
Our daughter has also had 4 febrile
convulsions. Even though I have the
proper suppositories and specific
instructions on how to use them, I panic
every time and call the ambulance
immediately. Our pediatircian and the
medics have all been great and very
reassuring. Her last one was last summer
after she turned 7. They are supposed to
grow out of them, but in her case, there
may be a bit of weakness. (We have had
several MRI and EEG to make sure she is
ok.) When we travel, I always take the
suppositories just in case. In spite of all of
the support and explanations, it is a very
freightening experiecne to see your child
have a convulsion, knowing you can't do
anything to stop it!
By Anne Bergasse on Friday, June 24, 2005 - 1:51 pm:
Since my son is prone to them too, I would
love to talk with you more about this
offline if you would kindly contact me by
email. For example - were her convulsions
always brought on by high fever?
I'm surprised about the age and glad to
learn about it. I guess I will do some more
research about this.
Thanks for contributing.
By Indo mommy on Saturday, June 25, 2005 - 11:26 am:
A convulsion can be real scary. Although it
really is not so dangerous. My daughter
now 2.5, has had 3 till date. The
suppositories work well. They are called
Febrile convulsions if they have been
tiggered by fever only. If there was no
fever then you should get it checked. The
longest one in my daughters case lasted
for 3 minutes and I too had turned blue by
I had never heard of them back home, but
then i have been a parent only for 2.5
years now (-* It seems they are quite
common in japan. My ped trying to pacify
a very hyper me, said he too had got them
4 times in his childhood.
Back home our ped would prescribe a
antipyretic like tylenol, but here the Peds
dont advocate the use of anti pyretics. The
belief being fever does more good than
harm. Antipyretics interefere in the
process. I am not a doc and even tho i
agree with this belief, i do follow it.
done some research on my own. The
seizures occur when the rise in fever is so
fast that its difficult for the childs brain
center to adjust so quickly. when you use
a anti pyretic, after the 6-8 hours there is
a chance of the fever rising quickly again
making children prone. I use Di-ap
(diazapam suppositories) at the onset of
what looks is going t be a high fever.
It works good. Dont get scared. the
instructions are if the seizure lasts for
more than 5 minutes, its time to call an
ambulance. But do get it checked. from
what i have read, they can last from 1-14
Other methods to keep the fever down can
be used simultaneously, like splashing
around in the bath. My child loves the
water, good for me. or sponging..the head
cooling strips which you get at the
chemists are not so effective as in actual
the trunk of the body needs to be cooled
to get the fever down and not just the
I know its pretty scary, but its ok. Febrile
seizures have no proven side
By Sue Slater on Monday, July 11, 2005 - 7:46 pm:
About a month ago my daughter spent a week at the International Medical Center Hospital at Toyama in Shinjuku-ku after suffering from a seizure. She had a blood test after arriving at the emergency in an ambulance, this showed elevated levels of inflammation and white bloods cells. Before the blood test results came back everyone was assuring me we could go home, and that the fit had been harmless. In fact, the fit was harmless but was an indicator that something else was seriously wrong. If (god forbid) my daughter ever has another seizure in future, I will insist that the doctors take a blood test. I also would get an ambulance as who knows how long a seizure is going to continue. Also I have a suppository now for her to use in case of high fever, which is a relief.